I still choose to get up each day and smile fiercely at the sun. Sure, maybe sometimes that smile looks more like a grimace of pain. Yet despite trisomy 18, despite grief of unimaginable magnitude, despite leukemia, despite Alzheimers, dementia, and mental illness, I choose to dig in my garden, to read books, to write, to cherish my children, the living and the dead, to kiss my husband, and to keep striving towards … whatever it is we strive towards—maybe just being a better person in the world. Maybe just spreading compassion and love.
It’s ok that I’m not perfectly patient and understanding and sympathetic every minute. Even if Hazel does have cancer. It’s ok that I’m angry on the inside and stressed and didn’t want to play Go Fish. It’s ok. It’s ok. It’s ok.
How is pediatric chemotherapy different in this age of pandemic?